The childhood arthritis & rheumatology research alliance network registry: demographics and characteristics of the initial 6-month cohort
نویسندگان
چکیده
Purpose In 2009, the Childhood Arthritis and Rheumatology Research Alliance (CARRA) established a longitudinal multi-center, multiple disease U.S. national registry (CARRAnet) for pediatric rheumatology with the intent of providing 60 participating clinical sites a new framework to drive observational clinical research and evidence-based care. CARRAnet seeks to enroll up to 20,000 subjects with childhood-onset rheumatic disease and twice yearly follow-up. We report baseline characteristics of the initial 6-month enrollment cohort; disease-specific results are reported separately.
منابع مشابه
Demographic, clinical and treatment characteristics of the carra registry systemic JIA cohort
Introduction Systemic Juvenile Idiopathic Arthritis (sJIA) is a disease with systemic inflammatory features as well as arthritis. Before biologic agents were available, a significant proportion of affected children suffered from poor outcomes. The Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry is a rich resource of information about pediatric rheumatic diseases includin...
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